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Feature Articles

Stigma in People With Type 1 or Type 2 Diabetes

  1. Nancy F. Liu1,*,
  2. Adam S. Brown1,2,*,
  3. Alexandra E. Folias3,†,
  4. Michael F. Younge3,
  5. Susan J. Guzman4,
  6. Kelly L. Close1,2 and
  7. Richard Wood3
  1. 1The diaTribe Foundation, San Francisco, CA
  2. 2Close Concerns, San Francisco, CA
  3. 3dQ&A Market Research, Inc., San Francisco, CA
  4. 4Behavioral Diabetes Institute, San Diego, CA
  1. Corresponding author: Richard Wood, richard.wood{at}d-qa.com
Clinical Diabetes 2017 Jan; 35(1): 27-34. https://doi.org/10.2337/cd16-0020
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  • FIGURE 1.
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    FIGURE 1.

    Consequences of diabetes-related stigma. The percentage of adult respondents with type 1 diabetes (Type 1, n = 1,334), type 2 diabetes (Type 2 [all], n = 3,833), type 2 diabetes on pump or MDI therapy (Type 2 Pump/MDI, n = 544), type 2 diabetes on insulin therapy (Type 2 Insulin, n = 1,721), type 2 diabetes not on insulin (Type 2 Noninsulin, n = 2,112), females with type 1 diabetes (Type 1 F, n = 860), males with type 1 diabetes (Type 1 M, n = 472), females with type 2 diabetes (Type 2 F, n = 2,349), and males with type 2 diabetes (Type 2 M, n = 1,468) who strongly agree (scoring 9 or 10 on a 10-point scale) that other people’s perceptions of diabetes have caused them to experience difficulty with an emotional aspect (experiencing feelings of guilt, shame, blame, embarrassment, and isolation), social aspect (being open about diabetes, finding a supportive community, having a full social life, and succeeding at work), or diabetes management aspect (successful management, adherence, and good choices) of living with diabetes. Statements are segmented by the factors associated with a significant increase in reporting of diabetes stigma (Table 1), including diabetes type, therapy regimen, and sex (A), A1C (B), BMI (C), and self-reported blood glucose control (D).

Tables

  • Figures
  • TABLE 1.

    Baseline Characteristics of dQ&A Patient Panel Respondents to the Stigma Survey (n = 5,422)

    Respondents With Type 1 Diabetes (%)Respondents With Type 2 Diabetes (%)
    A1C
     ≤7%
     >7%
    49
    51
    61
    39
    Therapy
     No insulin
     Insulin
     Pump/MDI
    0
    100
    92
    55
    45
    14
    Age-group
     Child
     Adult
     Senior
    13
    77
    10
    0
    71
    29
    Sex
     Male
     Female
    38
    64
    38
    62
    Employment
     Employed
     Not employed
     Other
    59
    3
    38
    43
    4
    53
    Ethnicity
     White
     Hispanic
     Black
     Asian
     Native American
     Other
    92
    3
    1
    2
    1
    1
    85
    3
    7
    2
    2
    1
    Income
     <$50,0002854
     ≥$50,000 to <$100,0004033
     ≥$100,0003214
    U.S. Region
     West
     Midwest
     South
     Northeast
    26
    23
    29
    22
    20
    26
    35
    19
    Education
     ≤High school diploma/equivalent1316
     Some college or bachelor’s degree5965
     Graduate or professional degree2818
  • TABLE 2.

    Prevalence of Diabetes-Related Stigma (Percentage of Respondents Who Believe Diabetes Comes With Social Stigma), by Diabetes Type, Management Regimen, and Healthographic and Demographic Factors

    Diabetes Type and Therapy RegimenType 1 Diabetes% (n)Type 2 Diabetes% (n)P
    All76A (1,168)All52D (1,995)A vs. D <0.0001
    B vs. C 0.006
    D vs. E 0.0261
    D vs. F 0.038
    D vs. G <0.0001
    Adults74B (1,001)No insulin49E (1,038)
    Parents83C (166)Insulin55F (957)
    Pump/MDI76 (1,093)Pump/MDI61G (336)
    Healthographic/Demographic FactorsType 1 (% [n])Type 1 PType 2 (% [n])Type 2 P
    A1C
     ≤7%
     >7%
    74 (528)
    78 (577)
    NS49 (1,041)
    56 (751)
    <0.0005
    BMI
     ≤25 kg/m2
     >25 kg/m2
    75 (422)
    74 (542)
    NS47 (190)
    52 (1,792)
    0.033
    Self-reported blood glucose control
     Not well controlled
     Neutral
     Well controlled
    71 (42)
    77A (430)
    72B (497)
    A vs. B 0.02864A (210)
    53B (856)
    48C (926)
    A vs. B <0.0005
    A vs. C <0.0005
    B vs. C 0.004
    Diabetes duration
     Diagnosis ≤10 years ago
     Diagnosis >10 years ago
    84 (397)
    72 (771)
    <0.000153 (1,099)
    50 (876)
    NS
    Sex
     Male
     Female
    68 (379)
    80 (787)
    <0.000543 (638)
    57 (1,352)
    <0.0005
    Depression
     Yes
     No
    78 (160)
    74 (811)
    NS58 (480)
    50 (1,515)
    <0.0005
    Income
     <$50,000
     ≥$50,000 to <$100,000
     ≥$100,000
    75 (249)
    76 (252)
    79 (296)
    NS51 (846)
    54 (537)
    53 (220)
    NS
    U.S. Region
     West
     Midwest
     South
     Northeast
    76 (296)
    73 (252)
    76 (335)
    76 (252)
    NS53 (397)
    51 (511)
    52 (688)
    51 (379)
    NS
    Education
     ≤High school diploma/equivalent
     Some college or bachelor’s degree
     Graduate or professional degree
    73A (143)
    74B (675)
    80C (342)
    B vs. C 0.01747A (291)
    52B (1,301)
    55C (391)
    A vs. B 0.026
    A vs. C 0.004
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Stigma in People With Type 1 or Type 2 Diabetes
Nancy F. Liu, Adam S. Brown, Alexandra E. Folias, Michael F. Younge, Susan J. Guzman, Kelly L. Close, Richard Wood
Clinical Diabetes Jan 2017, 35 (1) 27-34; DOI: 10.2337/cd16-0020

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Stigma in People With Type 1 or Type 2 Diabetes
Nancy F. Liu, Adam S. Brown, Alexandra E. Folias, Michael F. Younge, Susan J. Guzman, Kelly L. Close, Richard Wood
Clinical Diabetes Jan 2017, 35 (1) 27-34; DOI: 10.2337/cd16-0020
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